Communicating results through transmedia.

Novel Designs

Transmedia means that the same healthcare information is told to patients using different forms of media, with each media adding different perspectives. For example, while an infographic might list risk factors that a patient should avoid, a video can tell a story about how a specific patient changed her behavior to avoid those same risk factors. Below we describe how SporeData creates transmedia: Clinical topics. Our transmedia covers therapeutic options and their indications, risk factors, causes, and prognosis. [Read More]

Additional trends in relation to registries.

Enhancing Research Operations

Our previous post on clinical research registries generated a series of requests for us to expand the list of current trends. In response, here are a few more items to that list. Get patients involved in all steps of the process. Patient-centered research as PCORI has coined it. This approach adds value to the design, data collection, interpretation, dissemination, and implementation phases. In the beginning, people thought this was a way to be politically correct, but this turned out to be one of the most revolutionary ways to do research. [Read More]